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Resources

Depathologizing Language

Language shapes the way we see ourselves and how others see us. For too long, the language of genetics has been dominated by deficit-based terms like disorder, abnormality, and disease.

Tracking Milestones

Parents are often concerned about their child's future development and want to know what to expect. It's recommended to monitor each child's growth individually.

Prenatal Screening

Non-Invasive Prenatal Screening (NIPS or NIPT) is a common screening test that predicts if a baby has an increased likelihood for a genetic variation.

Educational Needs

Parents often struggle with the decision to share their child's diagnosis with the school. The right choice depends on various factors, including educational policies and cultural environment.

How and When to Tell Your Child

Many wonder how and when to tell their child about a diagnosis. Even when there are no outward signs of difference, having information from an early age can be beneficial.

Social-Emotional Development

Early monitoring of development is important for children with DNA differences, as they may have a higher likelihood of sensory and socio-emotional differences.

Character Strengths

Children with genetic differences are often described in terms of limitations and medical challenges. This focus makes it easy to miss their unique strengths.

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