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Social Development

Developmental monitoring is recommended as a routine part of well-child care visits for all infants, even in the absence of current concerns or genetic differences. 

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Character Strengths

Children with genetic variations can have some fantastic character traits that may allow them to be great leaders, friends, or makers.

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How & When to Tell Your Child

Many parents and caregivers wonder how and when to tell their child about a diagnosis. Having information from an early age can help your child accept themselves.

Resources

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Prenatal Screening

Non-Invasive Prenatal Screening (NIPS or NIPT) is a common screening test that predicts if a baby has an increased likelihood for a genetic variation. 

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Educational Needs

Parents often struggle with the decision to share their child's diagnosis with the school. The right choice depends on various factors, including educational policies and cultural environment.

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Growth Curve & Milestones

Parents are often concerned about their child's future development and want to know what to expect. It's recommended to monitor each child's growth individually. 

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